Debbie Hellenbrand

Debbie Hellenbrand is a patient advocate and Professional Speaker based in the Netherlands. She advocates for individuals with Ehlers-Danlos Syndrome (EDS) and related comorbidities, as well as for Veterans. For Booking options please contact me.

3FM Serious Request "Spieren voor Spieren"

In November and December, I am fully committing myself to 3FM Serious Request to raise money for Spieren voor Spieren (Muscles for Muscles).
This cause is deeply personal to me. My children live with Small Fiber Neuropathy as a comorbidity of Ehlers-Danlos Syndrome — the same condition I face myself. Because of this, I know firsthand how urgently support and research are needed.

Over the years I’ve been involved with Spieren voor Spieren, I’ve met many people living with muscle disorders. Some of them have become dear friends. Some, heartbreakingly, we’ve had to say goodbye to. And I think with warmth and compassion of a close friend of my children, who battles the effects of a muscle disease every single day.

This is why I take action.
Throughout November and December, I’ll be giving several guest lessons, hoping to inspire children to stand strong, come together, and raise funds for research and treatment. Every euro truly matters — each contribution brings us closer to solutions and to a future where muscles don’t hold us back, but carry us forward.

Would you like to make a difference too?
Join the movement for 3FM Serious Request – Spieren voor Spieren.
Together, we can create real change.

Visit the action page and get involved.
I can’t wait to see who I’ll meet in the classroom!

Kom In Actie voor 3FM Serious Request en steun Spieren voor Spieren. | NPO 3FM

Biography

Oct 31, 2025 3:12 PM

Debbie Hellenbrand is a patient advocate and professional speaker from the Netherlands. After years of medical neglect and the birth of her two children, she and her children were diagnosed with Ehlers-Danlos Syndrome (EDS). Their lives changed when they finally found a specialist who not only understood EDS but remains involved in their care today. His support inspired Debbie to speak out against the medical neglect and allegations faced by patients living with EDS and related conditions.

Welcome

I write about my life as both a caregiver and a patient. I hope my stories offer inspiration, comfort, and maybe even some solutions for those who may be going through similar experiences.

If you have any questions or suggestions, please feel free to contact me — I would love to hear from you.