Debbie Hellenbrand

Debbie Hellenbrand is a patient advocate based in the Netherlands. She advocates for individuals with Ehlers-Danlos Syndrome (EDS) and related comorbidities, as well as for Veterans.

Biography

Debbie Hellenbrand is a patient advocate and professional speaker from the Netherlands. After years of medical neglect and the birth of her two children, she and her children were diagnosed with Ehlers-Danlos Syndrome (EDS). Their lives changed when they finally found a specialist who not only understood EDS but remains involved in their care today. His support inspired Debbie to speak out against the medical neglect and allegations faced by patients living with EDS and related conditions.

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Welcome

I write about my life as both a caregiver and a patient. I hope my stories offer inspiration, comfort, and maybe even some solutions for those who may be going through similar experiences.

If you have any questions or suggestions, please feel free to contact me — I would love to hear from you.

I am truly proud to collaborate with the following organizations, who share the same passion and mission for positive change:

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